TY -的A2 Gazouli玛丽亚AU -卡特,伯尼盟——Rouncefield-Swales艾莉森AU -布雷,露西AU -布莱克,露西AU -艾伦,斯蒂芬盟——不分伯仲,克里斯盟——骗子,凯盟——Qualter帕梅拉PY - 2020 DA - 2020/06/11 TI -“我不喜欢的一件大事”:定性研究探索影响因素是否年轻人告诉面访或不告诉他们的朋友对他们的IBD SP - 1059025六世- 2020 AB -炎症性肠病(IBD)描述了一组条件,包括克罗恩病和溃疡性结肠炎。与一些慢性疾病,或多或少,IBD别人看不见的隐藏或使隐藏的条件,特别是当耻辱与条件相关联。隐瞒或保密允许身份管理的一种手段。披露一个慢性疾病不是一个单一的事件,这取决于很多因素。很少有文献,特别针对耻辱和/或披露与炎症性肠病的儿童和年轻人。深入定性研究进行,解释描述和使用访谈、参与性框架内友谊地图和照片。公众和患者介入和参与(PPIE)在(《盗梦空间》传播)进行研究。14-25岁年轻人与IBD曾参与调查阶段的大研究自我选择的参加面试,广泛关注社会连通性的友谊和感情。数据分析使用一个迭代,解释的方法。初步的主题是发达国家和这些都是进一步探索,然后初步理论联系友谊了。 One superordinate theme focused on disclosure. Thirty-one young people (16 males, 15 females, mean age 18.7 years; 24 Crohn’s, 7 colitis) participated in the interviews (of these, five created friendship maps and six utilised photographs). Three discrete, but interlinked, themes were generated, revealing young people’s experiences of disclosure: to tell or not to tell; controlling the flow: the who, when, what, and how of telling; and reactions and responses to telling: anticipated and actual. Decisions about telling friends about having IBD are challenging for many young people. Having control over disclosure is not always possible, and the potential consequences can feel risky. However, most young people had positive experiences of disclosure and gained support from friends and romantic partners. Most young people downplayed the seriousness of their IBD, revealing some facets of their condition, aiming to sustain their self-identity. Only one young person had been given professional support to disclose. Provision of support and opportunities to discuss whether, when, who, and how to tell friends and what the risks and benefits may be is something that could be woven into an ongoing and wider person-centred dialogue between young people and health professionals within routine clinic visits. SN - 2356-6981 UR - https://doi.org/10.1155/2020/1059025 DO - 10.1155/2020/1059025 JF - International Journal of Chronic Diseases PB - Hindawi KW - ER -